The "MS Hug" is no joke. It freezes me up and it reminds me of a seizure, but I am aware, but I can't do anything. I can't say anything, I am standing there helpless, frozen, my muscles tight my jaw tight, my legs thighs even the muscles in my butt and back tight. I can feel the muscles everywhere getting tight. Every time I get upset or frustrated or excited or I know someone else is getting upset or annoyed or I get a text ....and I can tell when they are coming but I don't know how to stop them yet. I have been researching the Internet.
My doctor hasn't given me the Magic Demyelinating Disease book yet and how to handle the symptoms. Or how to handle the depression or the loneliness. I don't know how to handle any of the constant pain. I can't handle the not sleeping. Or the people who can't keep their word. I can't handle tingling or the migraines. I can't handle everyone's home remedy that doesn't work. Or the inability to eat. Or the crying every night. Every morning. Every night. Every minute I am alone.
I can't handle all this constant advice from all these people who have no idea what I am going through who refuse to even listen to what I have to say.
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